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Cerebral Palsy Assistance

Authored by Chris Schroeder

There are numerous state and local programs dedicated to helping those with cerebral palsy meet their everyday needs. However, finding them can be a challenge.

Here, the CP Help Center has compiled a listing of some of the most useful patient resources for housing, employment, therapy, recreation, assistive technology, social programs and financial aid.

Help in Your Community

Centers for Independent Living

The Centers for independent Living are private, nonprofit companies promoting the independence of those individuals living with disabilities and optimizing the accessibility of their communities. These centers provide patient advocacy, skills training, information, referrals and peer counseling.

Local UCP Affiliates

UCP Affiliates provide local support for those living with cerebral palsy who need to arrange housing, physical therapy, assistive technology training, early intervention services, counseling, social and recreational programs, community living and employment.

State Departments of Disability Services

Directory of agencies in your state that oversee the delivery of services and support for those with disabilities.

State Councils on Developmental Disabilities

Directory of federally-funded programs in your state that are tasked with meeting the most pressing needs of people with developmental disabilities. Councils work to promote self-determination, integration and inclusion for those with conditions like cerebral palsy.

2-1-1 Information and Referral Center Directory

2-1-1 lines are free information and referral sources for health, human and community services. These provide help with emergency food pantries, rental assistance, public health clinics, child care resources, support groups, legal aid, and a variety of non-profit and governmental agencies.

Aging and Disability Resource Centers

Directory of resource centers that help older patients with disabilities arrange long-term support and services.

Financial Assistance

People living with disabilities have multiple options for financial assistance on the federal, state and local level. These include benefit payments, vouchers, grants, subsidies, loans and rebates. Many of these are based on the patient’s income needs.

Below is a listing of the top financial assistance resources for patients affected by cerebral palsy.

Social Security Disability Benefits

This federal program provides benefits and financial assistance to those who can demonstrate a qualified medical condition or the inability to perform functions necessary for employment. Learn more about how to qualify, the application process and how to appeal a claim denial.

Medicaid and Medicare

Link to the Centers for Medicare and Medicaid services, the agency that administers health benefits based on disability, advanced age or financial need.

Medicaid Waiver Programs

Waiver programs are state-specific and provide medical services like dental and nursing, as well as non-medical services like case management, respite and housing alterations.

UCP Bellows Fund

The Elsie S. Bellows Fund is a national endowment administered by UCP that provides funds to those with disabilities to purchase assistive technology equipment. Individuals can submit an application through their local UCP affiliate, who will forward it to the national office for committee review.

Benefits.Gov

Benefits.gov is a resource center combining information on most government benefit and assistance programs available to citizens in one location.

State Assistive Technology Programs

A directory of programs funded under the federal Assistive Technology Act that promote people’s awareness of, and access to, assistive technology devices and services. Programs usually provide funds and/or low interest loans to patients to purchase devices.

United Healthcare Children’s Foundation

This private foundation offers financial assistance to families of children whose commercial insurance coverage does not fully cover the cost of treatment.

Partnership for Prescription Assistance

This program helps qualifying patients without prescription drug coverage obtain the medications they need at little or no cost.

Variety: The Childrens Foundation

This program offers funding for walkers, wheelchairs, specially-designed adaptive bikes, strollers, prosthetic limbs and other devices to families of children with disabilities.

Disabled Children Relief Fund

This fund provides children with disabilities financial help to obtain walkers, wheelchairs, medical equipment, orthopedic braces, hearing aids, surgery, physical therapy, lifts and eyeglasses.